BY MARK SCHOLZ, MD
Dr.
Steven Strum and I, medical oncologists who specialize in prostate cancer,
founded the Prostate Cancer Research Institute (PCRI) in 1996. I still support
the PCRI by donating my services as Executive Director. Through its
conferences, helpline, newsletter and website, PCRI helps patients learn about
optimal prostate cancer therapy.
Why
is the PCRI important? “Modern” prostate cancer treatment, which is inherently
biased toward surgery, is actually a throwback to the past. Prostate cancer is
the last remaining type of cancer to have surgeons (urologists) directing care.
Thirty years ago, because surgery was the only type of treatment available, cancers
such as breast, colon, lung, pancreas and bone, for example, were supervised by
surgeons. Now, every cancer (except for prostate cancer) is handled by medical oncologists—cancer
specialists trained in a multimodality approach. “Multimodality” means that all treatments (or
treatment combinations) get equal consideration. Medical oncologists are
trained to tailor therapy to the individual characteristics of each patient’s
disease.
The
problem is there are less than 100 prostate oncologists in the United States to
serve more than three million prostate cancer survivors. That works out to a
ridiculous ratio of 30,000 patients per prostate oncologist. To give you an
idea of what a manageable patient-to-doctor ratio would be, at Prostate
Oncology Specialists where I work with two other full time prostate
oncologists, we have 1,600 active patients, a little more than 500 patients per
oncologist.
Is
prostate cancer an unusually simple cancer to manage? No. It’s actually quite complex. What we term
“prostate cancer” varies between extremes. There are low-grade forms that can
be safely monitored; more serious types that require combinations of radiation
and hormones; and “in-between” types that defy easy answers. For men with the advanced, metastatic type of
prostate cancer, the FDA has approved four new treatments in the last two
years, more than I have seen in my last 20 years as a prostate oncologist. Sequencing, timing, and combining these new
treatments require skills few surgeons have time to master.
Sadly,
simply providing up to date and accurate information to patients is not enough.
Prostate cancer is not only complex, it is emotional. Patients and their
families are all too often so frightened they need to be “talked down” from
their emotionally charged state with professional support and encouragement.
They can’t even begin to analyze their situation clearly until they calm down.
Also,
when suddenly diagnosed with prostate cancer, many men have serious
misconceptions that even professionals struggle to counteract. Three fallacies
make men easy prey to a “just cut it out” mentality. First, men logically
assume prostate cancer is just as dangerous as other cancers (see my October2012 blog, “The Un-Cancer”). Second, men
think the doctor who did their biopsy, their urologist, is a cancer expert.
Third, they believe they need to make a quick decision before the cancer
spreads. These mistaken beliefs mean men are at a severe disadvantage when
seeking the truth.
PCRI
tries to counter these problems by providing expert “one on one” support
thorough its helpline and the online Blue Community. The PCRI has also recently
initiated a new Mentor Program providing in-depth education for leaders of
support groups. We want everyone to
understand their situation from the perspective of a prostate oncologist. However, the magnitude of the task is daunting. Every year almost a quarter of a million men—
650 men daily—get the shocking news that they have prostate cancer.
Even
though this is my 17th year serving the PCRI and the prostate cancer
community, I am more energized, more focused and more determined than ever to
make sure men with prostate cancer have the opportunity to get the best
possible treatment.
However,
the PCRI mission always needs financial support. PCRI heavily utilizes
graphics, editing, internet and video to fulfill its mission. We also have
expenses for bookkeeping, fundraising and grant writing. Every year PCRI
undergoes a stringent “GAP” audit, documenting that more than 90% of dollars donated
go to fund programs while less than 10% go to administrative or fundraising
expenses.
If you are in a position to support the PCRI
mission, your help would be greatly appreciated. Every donation increases our
ability to get out much needed information to the prostate cancer community.
1 comment:
For anyone recently diagnosed, I urge you to re-read Dr. Scholz's wise and experienced words:
> [...] many men have serious misconceptions that even professionals struggle to counteract.
> Three fallacies make men easy prey to a “just cut it out” mentality.
> First, men logically assume prostate cancer is just as dangerous as other cancers [...].
> Second, men think the doctor who did their biopsy, their urologist, is a cancer expert.
> Third, they believe they need to make a quick decision before the cancer spreads.
> These mistaken beliefs mean that men are at a severe disadvantage when seeking the truth.
<---
As a support-group facilitator and lay counselor, I see men routinely falling into these traps. And in my own case, although I personally managed to get past these first three hurdles, it wasn't until after I had acquiesced to other misguided approaches to my care that I eventually turned to PCRI, Prostate Oncology Specialists, and Dr. Scholz.
Highly recommended.
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